Our founder's uncle in Brazil was diagnosed with ALS a few years ago. Witnessing the challenges he and the family faced during this difficult journey opened our eyes to the gaps in support that exist for ALS patients and their loved ones.
An ALS diagnosis can truly be isolating and overwhelming. We witnessed firsthand just how difficult it can be not only for the patient but also for entire families. Without proper resources, guidance, and knowledge, it is grueling to navigate complex medical systems, deal with financial burdens, and cope with emotional struggles.
In an industry with hundreds of organizations conducting critical research, we quickly realized that there was a lack of direct personal support to address the immediate challenges that families face daily. We were inspired to play a role in filling this gap by creating ALS Lifeline: a nonprofit dedicated to providing quick, hands-on assistance. Just as important is the Community connection and emotional support that we strive to provide to those affected by ALS.
We started ALS Lifeline to provide direct, practical help - wheelchairs, therapy sessions, compression socks, whatever people need. We keep it personal and hands-on.