Our founder's uncle in Brazil was diagnosed with ALS a few years ago. Witnessing the challenges he and the family faced during this difficult journey opened our eyes to the gaps in support that exist for ALS patients and their loved ones.
The experience revealed how isolating and overwhelming an ALS diagnosis can be - not just for the patient, but for entire families who suddenly find themselves navigating complex medical systems, financial burdens, and emotional struggles with limited resources and guidance.
We realized that while there are organizations doing important research, there was a critical need for direct, personal support that addresses the immediate, practical challenges families face every day. This inspired us to create ALS Lifeline - a nonprofit dedicated to providing hands-on assistance, emotional support, and community connection to those affected by ALS.
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