As a high school student, my perspective on life changed when my uncle and godfather, who lives in Brazil, was diagnosed with ALS a couple of years ago. Every year when I visit Brazil and during his visits to the U.S., I witness firsthand the challenges that ALS presents not just to patients, but to entire families.
This personal experience, combined with seeing friends whose loved ones have been affected by ALS, inspired me to take action. I realized that while there are many organizations fighting ALS, there was an opportunity to make support more personal and direct.
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